Girl, 17, battling rare disease that transforms her muscle into a second skeleton and will turn her into a living STATUE
Seanie Nammock has FOP - an incredibly rare genetic condition Her muscle and tendons are slowly turning to bone The slightest knock can cause painful flare-ups and lock up her body Just 600 people in the world have FOP, which receives little funding
Brave woman, 25, battling rare condition turning her into a human statue as smallest bump can change her muscles to bone
Lucy Pratt's neck has already seized up and she can't move arms over head Race against time for cure before she is covered in an 'external shell of bone' 'My biggest fear is it going into my legs. I don't want to be in a wheelchair'